YouTube Channel

So in admits what has been one very turbulent year, so many things have happened, both good and bad, but i’ve setup a couple of youtube channels the main one I want to mention here is my personal one, which will be focused around living with F.N.D and just showing what is possible, i’m not going to show much of the shit side of living with F.N.D, there’s too much of that already, but very little of the triumphs.

The channel is here - Ru’s YouTube Channel

The Waiting game

So I’ve been told they are going to admit me to hospital for a month of intensive physiotherapy, to try and reverse the symptoms of my F.N.D condition. I will keep you all posted when I find out what’s happening.

I had a meeting with the FND team the other week and apparently because they saw me on the phone for m5 minutes they think they can cure me. Not sure how that works. Make no sense to me as it’s normal for me that moving help alleviate the symptoms, while arid heat totally cures me until I come back to the damp and cold of the UK. I need to get out of here.

Thinking Australia or America

Any Suggestions?

A few things about Functional Neurological Disorder

First and foremost Functional Neurological Disorder causes a lot of pain, personally heat really helps me, if I get cold, I can be bed ridden. but I know of people who are polar opposite. It’s a very weird condition, it makes your body do things you did not realise were possible. I have video I might post of my toes going round in circles.

Brain fog… this is so annoying you know what you have to do or what the answer is, but you can not retrieve the answer.

Convulsions, this are painful and not much fun, personally I have three levels of them

  1. Just my fingers are twitching, neck, toes and legs.I find it hard to walk

  2. Im shaking all over it moves through my body the whole time, I have no control of it at all, it can also go into my face as well making it very hard to talk.

  3. My body goes into semi paralysis in that I can not more my arms or hands voluntary it can also go into my lungs paralysing them making it very hard to breath, I can also be in severe convulsions where my body will be banging against the floor. It